Table of Contents
Is there a charity for hydrocephalus?
The Hydrocephalus Association is a national, non-profit organization that provides support, education and advocacy for families, individuals and professionals dealing with the complex issues of hydrocephalus, the abnormal accumulation of cerebrospinal fluid within the brain.
What is the life expectancy of hydrocephalus?
Survival in untreated hydrocephalus is poor. Approximately, 50% of the affected patients die before three years of age and approximately 80% die before reaching adulthood. Treatment markedly improves the outcome for hydrocephalus not associated with tumors, with 89% and 95% survival in two case studies.
What is the Hydrocephalus Association?
About the Hydrocephalus Association We fund high-impact research, provide support and educational resources for patients and caregivers, and advocate on behalf of the hydrocephalus community on key policies and legislation.
How many people in Canada have hydrocephalus?
SDMX
| Total, all ages | ||
|---|---|---|
| Both sexes | ||
| Spina bifida | 35,086 | 0.1 |
| Hydrocephalus | 13,236 | 0.0 |
| Muscular dystrophy | 23,350 | 0.1 |
Is hydrocephalus a congenital anomaly?
Congenital hydrocephalus is caused by a brain malformation or birth defect that causes excessive cerebrospinal fluid (CSF) to accumulate in brain cavities, called subarachnoid space. Cerebrospinal fluid is a clear, colorless liquid that surrounds the brain and spinal cord, protecting them from injury.
Who is the oldest person with hydrocephalus?
The longest living hydrocephalic is Theresa Alvina Schaan (Canada) who was born on the 17 March 1941 and diagnosed with having congenital hydrocephalus. Also known as “water on the brain,” it is a condition in which there is extra cerebrospinal fluid (CSF) around the brain and spinal cord.
How long does a shunt last?
It is difficult to predict how long shunts will last, but some practitioners note that about half of all shunts need to be revised or replaced after 6 years.
Who does hydrocephalus affect the most?
Hydrocephalus can affect anyone at any age but is most common in infants and older adults. Some of these cases can be associated with abnormalities in the brain and spinal cord during pregnancy. The two major types of hydrocephalus are called communicating hydrocephalus and non-communicating hydrocephalus.
What is spina bifida and hydrocephalus?
Hydrocephalus. Many babies born with spina bifida get hydrocephalus (often called water on the brain). This means that there is extra fluid in and around the brain. The extra fluid can cause the spaces in the brain, called ventricles, to become too large and the head can swell.
What is the difference between hydrocephalus and macrocephaly?
In fact, macrocephaly is external hydrocephalus caused by benign subdurals of infancy. Unlike forms of hydrocephalus caused by increased CSF in the ventricles, the external form involves fluid outside the brain, usually does not require any treatment and typically resolves itself over time.